I took Dylan to the Neurologist today because for the last 2 weeks he has been having these little eye flutters/tremors throughout the day. They only last a few seconds but have made me concerned that they may be seizure related. Luckly Dylan happened to have 3 of these little episodes during the appointment so the doctor could see what I was talking about. This doctor hasn't seen Dylan since he was a infant but he remembered us very well and it was great to go to an appointment and not have to educate the doctor on WHS. He performed a very thorough exam and he is not sure if they are seizures or not. He thinks they maybe are just benign tremors but is scheduling an EEG just to make sure. (Dylan had an EEG - which was normal - when he was about 2 months old because he was having a lot of eye rolling/body flinching.) He just wants me to let him know if they increase in severity and/or duration and does not want to put him on medication at this time. He was pleased to see how well he is progressing. I guess it was a good appointment but I am still very worried about him. I pray that he does not have seizures. On a good note he weighed in at 14lbs 2oz!
The rest of March and April are kind of crazy for me. On top of 3 days/week of PT/OT, he will be going to see Cardiology, Opthomology, the Pediatrician for his 1 yr check up, have an EEG, and spinal surgery (scheduled for April 21st - which Mitch and I have to go down to San Diego a few days before and donate blood just in case he needs it). Also thrown into the mix - I still have to work part-time, am in the process of finding a new boarding stable for my horse (which is a whole other story and adds a lot of extra stress for me), take Hailey to 3 birthday parties and plan her 4th B-Day, try to keep my house clean and all the laundry done, and hopefully get a hair appointment in somewhere. I am a tad bit overwhelmed at this point in my life, but what can I do except take it day by day. I know that March and April will fly by and then everything will be better (hopefully).
To end this post: a video of Dylan after his bath tonight and some pictures of a happy little pickle.