As I sit down to write this post I am still at a loss for words. On January 10,2012 (just a few short days ago) a beautiful little girl named Amelia, who, like Dylan has WHS, was denied a life saving kidney transplant because (using the doctor's words) she is "mentally retarded." I don't want to try to summarize her mother's account of that day, so if you would like to read her posting click HERE.
Being a RN and in the medical field for the past 12 years I have never heard of someone being denied a transplant because of their mental capacity. Honestly, it never even crossed my mind that it would be a consideration. How can a doctor be the one who decides who can live and who can die? If this was happening to Dylan I know that I wouldn't go down without a fight. Amelia's parents are fighting for her too and I hope and pray that the doctor and the hospital will change their mind and give her a chance at life. If you would like to support Amelia please follow this link and sign the petition.