Our Little Pickle

Sunday, January 13, 2013

One of those days...

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Today was one of those days where I was reminded of Wolf-Hirschhorn Syndrome and it hit me hard.  Today Dylan was invited to a birthday part...
6 comments:
Saturday, December 29, 2012

Coming to an end...

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As the year is coming to an end I wanted to reflect back on all that has happened.  It has been a very good year, except on December 1...
1 comment:
Monday, November 19, 2012

Dylan The Great!

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I had to share this video from PT today - and if you don't have a child that struggles with low tone and pelvic instability you won'...
5 comments:
Sunday, November 18, 2012

ShutterMom Workshop

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Last weekend I attended my first photography workshop.  Up until now I have mostly been self taught and learning from my sister and another ...
2 comments:
Thursday, November 8, 2012

2012 WHS Halloween Contest

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WolfHirschhorn.org is having a Halloween costume contest.  Please go to the site and vote.  All the children on the site are affected with W...
Monday, October 29, 2012

My Three Little Pumpkins

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 Halloween is in two days!  I still don't quite know where the time has gone.  In the last week I have taken the kids to three differe...
2 comments:
Tuesday, October 23, 2012

First Parent-Teacher Conference

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Today we had Dylan's first parent-teacher conference. I will say again how much I absolutely LOVE this school! They told us that Dylan c...
2 comments:
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About Me

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Kristy
Welcome to my Blog. I have created this so that family and friends can stay updated with us. My name is Kristy, and Mitch and I have been happily married since January 2004. We have three beautiful children(Hailey,Dylan and Luke), a dog(Huckleberry), a horse(Kelsey) and four desert turtles. Dylan, our beautiful baby boy, is 3 years old and was nicknamed "dill pickle" by the Pediatrician on the day he was born and it just stuck. He has a rare genetic disorder called Wolf-Hirschhorn Syndrome. He has had a lot of little bumps in the road but all in all he is a very happy baby and is greatly loved by everyone around him.
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